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care you deserve

ebb&flo

about

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myendoMD

ebb&flo is the health and biotechnology company creating a new healthcare paradigm for women and people AFAB*'s chronic care.

ebb&flo's chronic care solutions set the standard for health equity, transparency and efficacy. We support you with personalized end-to-end care that is seamless; connecting you to diagnostics, telehealth, pharmacy services and everything else you need to manage your chronic illness all at your fingertips.

 

We're starting with endometriosis. Introducing myendoMD ; your one-stop shop for all things endometriosis care. It's time for the endometriosis care you deserve.

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tech stack

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cure

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connect

Say hi! We'd love to hear from you.

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awareness camapaign

*endometriosis is a full-body chronic inflammatory disease with autoimmune like behaviours affecting 1 in 9 people undiscriminating of age, identity or ethnicity. Considered 1/20 on
NHS "20 Most Painful Health Conditions a Person Can Have" list.

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open letter 

At age 9, I experienced my first menstrual cycle and endometriosis symptoms. Despite seeking medical treatment and support, over the next 17 years, I was frequently accused of seeking attention and misdiagnosed with various conditions like bipolar disorder, depression, anxiety, polycystic ovary syndrome, pelvic inflammatory disease, and sexually transmitted diseases. I was prescribed various forms of narcotics, antibiotics, birth controls and suggested treatments such as pregnancy and hysterectomy, while being made to believe that to be in pain is to be a woman. It wasn't until I had a miscarriage and an anembryonic pregnancy at age 25 that I was finally properly diagnosed with endometriosis and adenomyosis.

At age 26, I was informed by my doctor that my only remaining treatment options were a hysterectomy or induced chemical menopause. I decided to undergo weekly 3 hour ketamine infusion therapy and menopause, later hospitalized for a deep vein thrombosis (DVT). My doctor, who is a top endometriosis specialist in North America, accused me and the hospital staff of lying about my DVT, put me on indefinite blood thinners, and ignored my calls and emails when dismissing me from his care.

At age 26, I also experienced my first medieval procedure; cervical conization. Cut by arts-and-crafts looking scissors, without any anesthesia or numbing for abnormal cells. I was told I needed conization procedures on a yearly basis for the next five years because of how bad it was. After experiencing six months of bleeding, I begged my gyno for help, but they denied me care because I denied getting another conization at the same time, insisting I urgently needed too, while also ignoring my requests for my biopsy results. I switched my care and received my reports indicating that there was nothing wrong with my cervix.

At age 27, I was diagnosed with ADD and prescribed amphetamines. I experienced temporary blindness, paralysis, onset stuttering, and collapsing. When I sought medical attention at the ER, I was dismissed as having anxiety and depression and told to continue taking the ADD medication. My symptoms worsened over time and my doctor began an investigation for multiple sclerosis while insisting prescriptions (SSRI's) for ADD and depression. Several different medical opinions later, it was considered I was suffering from serotonin syndrome; being poisoned by the amphetamines. 

No one believed me. That is why I took a video every day for 730 days, and continue too. This is the fight of my life and in some capacity, we all are in the fight of our lives living with endometriosis. For some- a fight for the lives we use to have, for others- a fight for the lives we never had and for all of us- a fight for the lives we deserve to have.

The lack of care and urgency for women and people AFAB's healthcare, especially for womxn of colour, demands urgent and immediate change. I can’t express to you the overwhelming pain in my heart I feel for all of us but I can show you the abundance of love I have for all of us through ebb&flos' innovations for the care paradigm that is rooted in the care we deserve.

Please join me this year in re-introducing endometriosis as a full body chronic inflammatory disease with autoimmune like behaviours impacting 1 in 9 women, transgender and non-binary people; people AFAB. 

Join me in shouting from every rooftop, making endometriosis the most discussed topic of the year because we are relentless in our voices being heard, our stories being shared and our care turned into one we deserve.

It’s time.


With love, determination, strength and healing,
Kelly
Founder and CEO 

myendoMD

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myendoMD

endometriosis care you deserve

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myendoMD

No more ridiculous wait-times, preventable hysterectomies, decades of mistreatment and misdiagnosis, disease progression and surgical complications.

 

It's time for the endometriosis care you deserve- finally.

 

myendoMD is the first endometriosis digital care clinic for the 1 in 9 women and people AFAB*. Our chronic care solutions set the standard for health equity, transparency and efficacy. We support you with diagnostics, telehealth, pharmacy services and community.

Welcome to your destination where everything you need
to manage endometriosis is at your fingertips. 

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Your Trusted Partner in Endometriosis Care

*AFAB- assigned female at birth
**App Invite- Want to be the first to try our new app? Join our beta testing team!

myendoMD

Join Waitlist

Virtual endometriosis care when you need it the most at your 
fingertips.

Virtual endometriosis care when you need it the most at your 
fingertips.

 

Launching in Canada, U.S &

South America 2023.

Launching in Canada, U.S &

South America 2023.

Inclusive

Our myendoMD team virtually provides holistic, compassionate, and evidence-based endometriosis care with a focus on women of color, transgender and non-binary people.

Our myendoMD team virtually provides holistic, compassionate, and evidence-based endometriosis care with a focus on women of colour, transgender and non-binary people.

Affordable

To meet all your financial needs, our myendoMD team will guide and educate you through your options of care and therapeutic solutions we offer.

Ranging from naturopathy, pharmaceutical, pharmaceutical generic brands and surgical referrals.

Innovative

We know options, test and imaging results can be confusing.

We know appointments can be overwhelming.

With myendoMDs' AI technology, you can feel confident, knowledgeable, and supported on your healthcare journey.
We make it easy for you to understand your healthcare conversations, reports and results to make informed decisions about your health.

Holistic

We believe the best approach to endometriosis is multidisciplinary.

We believe in treating the whole you; mind, body, lifestyle, movement and soul. 

Educational

With many endometriosis misconceptions, unproven solutions, mistreatments and underwhelming care, it can be hard to know how to navigate your endometriosis care.

With access to live support and programs, on-demand classes and conversations, understanding how to live with endometriosis can now be a easier.

myendoMD

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** Thank you for your input of future areas myendoMD will consider launching in. We look forward to giving you the care you deserve. Our launch focus for 2023 is North America and South America.

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*TW: Potentially disturbing or triggering content
*AFAB-assigned female at birth

Get In The Know

+join our awareness campaign

Endometriosis is greatly underfunded, under-researched and underserved. 200+ million women and people AFAB* suffer from endometriosis, a chronic full-body disease. That’s more than type 1 diabetes, MS, lupus, ALS, heart disease, breast cancer, prostate cancer and ovarian cancer combined.

Regardless of endometriosis being acknowledged as one of the top most painful diseases, many people with endometriosis are not believed due to the normalization and stigmas surrounding women and people AFAB's pain and health amongst society, practitioners and patients. People are committing suicide and accidentally overdosing because of this. This is a horrible outcome for the healthcare and wellbeing of women and people AFAB.

 

myendoMD is committed to create the awareness and advocacy endometriosis needs and deserves. Join us here to share your endometriosis experiences for our advocacy campaign;
moments of internal hell | a misdiagnosed memoir.

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At 11, I became disabled from my endometriosis, my mom bought me a walker and I had to be homeschooled from bullying. It was the worst.

 

I was told my pain was part of being a woman.

I was misdiagnosed with acute appendicitis by 12.

 

At 13, during my appendix removal surgery they found my organs were glued and too obstructed to save. I had my entire colon, appendix, rectum and large intestine removed.

 

At 15, I had ovarian cysts the size of tennis balls removed and part of my left fallopian tube.At 21, I had a hysterectomy because I was promised I would never have endometriosis again. I had all of my symptoms return 5 months later. I was mortified and ignored. My doctor and 17 others told me it was impossible to still have endometriosis.

 

No one believed me.

Sarah, 32

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Endometriosis is a chronic inflammatory disease with autoimmune disease like behaviours. There is no known reason or cure. Endometriosis often causes mutations. These mutations often cause cysts (endometriomas), spider-web adhesions that bind organs like glue, and lesions that bleed mimicking the menstrual cycle. The blood from the lesions have nowhere to exit and pool in the pelvic cavity causing inflammation. Endometriosis is a full body disease that is most commonly recognized in the reproductive and gynaecological area. Endometriosis has also been found in the bowel, diaphragm, throat, lungs, eyes, external skin and the brain!

Did You           Know?

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Being a black woman with endometriosis since the age of 11 has had me contemplate my existence for the past 20 years.

 

I am constantly ignored, denied and

neglected. Every specialist or doctor I've had told me that my pain was normal or that it's just in my head. Some even told me I was attention seeking.

At 25, I finally saw an endometriosis specialist for less than 10 minutes after being on a 2 year waitlist. He looked me up and down and told me I looked fine, my scans were normal and that it was bad enough out there for people like me to be bringing unwarranted chaos into my life. I couldn’t get a word in because he left the room. I was beyond shocked, confused, heartbroken and disgusted. The secretary came to check on me to guide me out because I guess I sat too long in the room crying in disbelief.

 

I’ve lost so many jobs, friends, partners, opportunities because I’m in excruciating pain all the time. Some days I can’t even move and have to crawl to get to the bathroom. I live trapped in my body.

 

After the passing of Aubrion Rogers, I'm terrified for my life.


No one believed me.

No one believed her.

Mila, 34

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Common symptoms include chronic or sharp, stabbing like pain especially during ovulation, a menstrual cycle (dysmenorrhea), sexual intercourse, urination or bowel movements, pelvic and lowerback pain, spotting, abnormal or heavy menstrual bleeding, shortness of breath, chest pain, brain fog and fatigue, gastrointestinal issues, infertility,sciatic nerve pain, bloating or nausea.

Did You           Know?

1 in 9 women and people AFAB* suffer from endometriosis often followed by adenomyosis, a similar mutation where the endometrium mutates into the muscular wall of the uterus.

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Although endometriosis symptoms were first documented in the Ebers Papyri (one of the oldest known medical works) during 1550BC. and is the second most common gynaecological issue, it is still a greatly misunderstood disease amongst practitioners, patients and society.

Endometriosis has an average 11+ year diagnostic wait time. Even longer for women of colour, transgender and non-binary people. 6 in 10 cases often remain undiagnosed. 

In the time that it takes to be diagnosed with endometriosis you could fly to the moon 456 times,
run 14,231 marathons or climb Mount Everest 45 times

 

Did You           Know?

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We're setting the standard for how womxn with chronic conditions We're revolutionizing the

The hardest part of living with endometriosis is the constant advocacy and fight to get information and options with doctors and specialists. It's exhausting.
I'm exhausted. I have been fighting for help, to be heard, understood since I was 14 when I was rolled up to the ER on a stretcher from vomiting and passing out at school from pain. The doctor told me it was normal, every woman went through this and that my pain tolerance was just low. Recommending me to ignore the pain.

 

I was misdiagnosed for 27 years. I went from having to change through my tampon and pad every 30 mins to experiencing chronic pain and random cyst ruptures. I lost my job and custody of my child because I couldn't move or take care of myself. I became very depressed.
I was so desperate for pain relief, I signed up with a non-specialist for surgery; the biggest mistake of my life.  I had a botched endometriosis surgery that left me without organs I didn't agree with removing and with a colostomy bag for 1 year because of two failed anastomoses that leaked into my pelvis. 

No one believed me. 

Leigh-Ann, 48

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From the age of 13, I was misdiagnosed for UTI's. I was only able to be approved for a hysterectomy only after coming out as trans at the age of 39 and never because of the hell of pain I was in from endometriosis and adenomyosis.

I begged for a hysterectomy for all those years.I constantly struggled with dysphoria, deadnaming and misgendering. I was constantly told to just take birth control or get pregnant regardless of how many times I had to correct someone. I spent more time correcting my doctors than getting help for endometriosis or adenomyosis.

When I finally got my hysterectomy, my uterus weighed 4 pounds and my bladder was covered in adhesions attached to my uterus. Turns out it wasn't a UTI.


No one believed me.

Rick, 42

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Racial bias, sexism and ignorance play a huge
role in disease research and education, delay of diagnosis, solutions and preventative care for endometriosis patients.

The first endometriosis analysis for transgender people was only published in March 2021 and for
Hispanic women in May 2020.


Hispanic and Black women are 50% less likely to
be diagnosed with endometriosis.
There are few 
studies and higher complication rates for endometriosis and surgical care amongst Hispanic, Black or African American, Native Hawaiian or
Pacific Islander, and American Indian or
Alaska Native patients
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Did You           Know?

tech stack

We're patient focused, AI driven.

By leveraging AI and technology, we aim to benefit all stakeholders, improve access to care and provide a more personalized and supportive treatment experience for endometriosis patients. Further expanding into other womxn's chronic care platforms with a core-shared technology platform for a competitive API and IP landscape.

less than 5 minute clinical diagnostics 
and care recommendations

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mindo.ai

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Instead of the average 11 year diagnostic wait-time, even longer for women of colour, transgender and
non-binary people.

a review tool that helps patients understand their medical documents

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Now you can feel confident, knowledgeable, and supported on your healthcare journey.
We make it easy for you to understand your healthcare conversations, reports and results to make informed decisions about your health.

prendi.ai

Crafted with Care

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we're building the future of women and people AFAB's chronic care